I don't see a lot of posts here besides articles so I hope this is OK. Just starting out looking for information.
The short version is that I was diagnosed last April with osteopenia at the age of 30. My doctors at the time sort of shrugged it off because we figured it was related to my other medical conditions, but my current endocrinologist is looking for a cause and would like me on treatment. I've been on Vitamin D and calcium since April but have been reluctant to go on fosamax/actinel for a couple of reasons.
Other health issues include hypothyroid (I've been on replacement hormone since 1998 and stable until 2006 when my levels went up and then down. I'm stable now on a slightly higher dose of replacement hormone), Type 1 diabetes and cerebral palsy. I walk so I don't have any issues of bone fragility due to immobility or lack of weight bearing or similar. My mother has osteopenia and has been on actinel. She was much older than I am when she was diagnosed, though.
There's a question of if I have PCOS and if so, if it could be explaining the bone density problems. I have some symptoms but not others, and if it doesn't affect my bones I frankly don't care if I have it or not because the symptoms don't otherwise affect my life. I found some articles that suggested PCOS might actually be GOOD for bones.
My endo has ordered a gazillion tests. My alkaline phosphatase is low. We doublechecked. It's still low. This has something to do with the bone growth cells not being active enough. It still doesn't explain WHY they aren't active enough, however. Most of what I've read about low alkaline phosphatse doesn't seem to apply to me. It can happen with hypothyroid but mine has been well controlled. We're checking my parathyroid hormone level (it was normal in April) and phosphorus level and going from there.
I broke my toe last month by dropping a jar onto it from the top of my refridgerator. Thankfully I got the ER doctor to say anyone could break a toe under those circumstances because otherwise my endocrinologist was threatening to hook me up to a fosamax IV right then and there!